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Showing posts with label Hyperemesis. Show all posts
Showing posts with label Hyperemesis. Show all posts

Saturday, August 3, 2013

It's True

For those of you who follow me on Facebook or Instagram, you got a sneak peak in to what's happening around here starting Monday, Aug 5.

I'm starting T25 and Shakeology.
(Yes, I'm starting this the day after D's birthday.  And you can bet your sweet patooty that I will be going allllll out to celebrate, which may leave me crying like a little girl on Monday, but whatever.)

Since having J and my body recovering from HG, it's taken me longer than what I expected to feel good.  And after J was born, I kind of ballooned into a bigger version of myself.  I've been holding steady at the same weight for months now.  And I'm feeling consistently good.  So, it's time.  Time to make myself and my health a priority.  I'm the only wife D has and the only mom J has, so I need to take care of myself for them.
(Quick shout out to my friend Katey who really has been so encouraging and kind to me - her consistent support has really helped me make this decision to commit to being healthy.)

I'm really excited about T25 - 25 minutes a day, 5 days a week for 10 weeks.  I can totally do that.  It might be 25 minutes of getting my butt kicked, but I can do it.  There's even a chart to mark off your work outs every day!  My OCD brain is geeking out over that!  And I've heard such great things about Shakeology that I'm excited to get on that train, too.  Not to mention my order came with recipes and meal plans and so many things to really help me stay on track.  I really feel like if I follow the instructions I can't fail.

There may be some posts in the next week about me missing Coca-Cola.  Or peanut-butter M&M's.  But help me push through!  Help keep me strong!  
D and I are creating a grocery shopping list tomorrow and stocking up the house with healthy food.  He's also going to be doing T25 along with me (although we'll be working out at different times and I'm not going to share my Shakeology).  My ultimate goal is to lose 30-40 lbs.  I've created a series of rewards so I can focus on smaller increments instead of being overwhelmed by a daunting 40 lb goal.  My incentives are: 10 lbs - Foam Roller Bar; 15 lbs - Princess Perfume (sample size - I don't wear perfume that often); 20 lbs - Facial or "Makeover"; 25 lbs - Massage; 30 lbs - Tickets to a theatre show or a Red Wings game; 35 lbs - New Dress; 40 - Vegas Weekend!  I have chosen to bribe myself with things I wouldn't buy for myself under normal circumstances so that they really are incentives.  For example, I have never bought myself a massage (with the exception of on our cruise back in 2011).  Incentives might seem silly to some, but I'm not above bribing myself. 

So here's to a healthier tomorrow and a healthier me.

Thursday, June 13, 2013

Unto One of the Least of These

Last night, D and I went and visited a stranger and her boyfriend.

She is 11 weeks pregnant and has hyperemesis gravidarum.  We were connected through HelpHER.org - a HG education and resource foundation.  As an HG survivor, I was asked to call, text and go visit her and be a support and advocate throughout her pregnancy.  And I happily agreed.  But, last night I didn't go to her home with the greatest of attitudes.  I had just gotten home from a trip to Oregon with J and I just wanted to spend the evening at home with my little family.  Honestly, I was wondering if there was any way I could get out of this visit that I agreed to make.

This sweet lady has been sick since week 5 of her pregnancy.  Her boyfriend has never dealt with HG before.  He recently lost his job for taking time off to help her.  She's off work on disability.  Their families are less than supportive.  Life is challenging for them right now.

D and I went to their home and I washed her hair while we talked (she hadn't been able to wash it for two weeks because she has a PICC line connected to a 24-hour pump).  D talked to the boyfriend and let him vent while offering insight and support as someone who's been in his shoes.  

In our short time there yesterday, I was filled with a strong feeling of love for this woman, her boyfriend, and their child.  And I was overwhelmed with the love that our Heavenly Father has for her. 

And I couldn't help remember the verses in Matthew 25:
Then shall the King say unto them on his right hand, Come, ye blessed of my Father, inherit the kingdom prepared for you from the foundation of the world: For I was an hungred, and ye gave me meat: I was thirsty, and ye gave me drink: I was a stranger, and ye took me in: Naked, and ye clothed me: I was sick, and ye visited me: I was in prison, and ye came unto me. Then shall the righteous answer him, saying, Lord, when saw we thee an hungred, and fed thee? or thirsty, and gave thee drink? When saw we thee a stranger, and took thee in? or naked, and clothed thee? Or when saw we thee sick, or in prison, and came unto thee? And the King shall answer and say unto them, Verily I say unto you, Inasmuch as ye have done it unto one of the least of these my brethren, ye have done it unto me.
D, J and I are so very blessed!
So many people have unselfishly served us, especially in the last couple years when we've had so many struggles (infertility, difficult pregnancy, NICU, clubbed foot, job loss, etc.).  We have been so cared for.  The Lord has never left us uncared for.
And any small opportunity I have to serve I should seize happily!

All I sacrificed tonight was a couple hours of my time.
And I don't regret it at all!  In fact, I wish I had had more time to give.


God loves this woman and wants her to be happy.  And I was able to lighten her load a little bit tonight.  But my feelings of gratitude to the Lord for this opportunity make me feel like I was really the one who was blessed tonight.

Wednesday, May 8, 2013

J's Birth Story

In honor of my sweet boy who turns 1 tomorrow (What?!  Where did the time go?!), I decided to share my birth story.  If this isn't your thing, I won't be offended if you don't read it.  My labor and delivery was super difficult and it's taken me some time to be able to talk about it without getting really emotional.  Please understand that while you might not have made the same choices as I did, I did the best that I could.

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On Sunday, May 6, I wasn’t able to feel Jack move the whole day.  D and I grew increasingly concerned as I tried a variety of different things to get him to move: drinking cold water, eating, throwing up, taking a bath, going on a walk, changing positions a lot (standing, sitting, laying down).  Nothing worked so I asked D to give me a blessing.  In the blessing I was told that Jack was safe but we needed to go to the hospital.  We grabbed the small hospital bag that I had packed and left immediately for Kaiser.  Once at the hospital, I was hooked up to monitors to check Jack’s heart rate and to see if I was contracting.  Jack’s heart was reading normal - hearing his heart beat was so comforting!  The doctor came in and did an ultrasound to be sure that Jack was moving, that he was breathing and his heart was beating, and that his umbilical cord wasn’t wrapped around his neck or anything.  Everything looked great on the ultrasound and I felt Jack move a couple of times so the doctor sent us home.  The doctor suggested that I increase my IV hydration to keep the amniotic fluid levels up so that Jack could move around.  Before we left the hospital, the doctor made us promise to come back if my water broke, I was bleeding, if I was having contractions or if I couldn’t feel Jack move again.  D and I went home grateful that Jack was fine. 

Monday, May 7, I had my 36-week doctors appointment.  I hadn’t gained any weight still.  We talked about increasing my hydration frequency - my doctor ordered a IV pump to be delivered to my home so that I could hydrate daily at home.  The other problems that I was encountering (chest pains, restless leg, heartburn) and the fact that I was going to Labor and Delivery frequently for various issues seemed unimportant to my doctor and he wanted me to carry Jack to full term.  We went over pre-term labor signs, all of which I’d been experiencing for months.  I left feeling incredibly frustrated and like I would be pregnant forever.  D and went on a short walk that night and I told D that with everything that had happened during this pregnancy, I was going to need my water to break in order to know if I was in labor!  I was also grumpy because I was so overwhelmed and done with being pregnant.  I was frustrated with being sick, the heartburn, restless legs, chest pains, and everything.   It seemed like something was going wrong at every turn.

On Tuesday, May 8, I woke up around 8 am, much earlier than usual.  I didn’t want to get up and rolled over to my other side to try and go back to sleep.  I felt some warmth between my legs and thought I was peeing my pants a little.  I had read about bladder incontinence during pregnancy but had never experienced it.  I felt the same warm sensation a second time and decided I needed to get up and go to the bathroom.  I stood up and felt a rush of warm fluid.  I hurried to the bathroom and discovered I was soaked in a ton blood.  The toilet bowl quickly filled up with bright red blood as well.  I was extremely worried, to say the least!  I ran back to the bedroom to get my phone and called D.  I said something along the lines of, “I’m bleeding, come home right now.”  I was still bleeding a great deal and was sitting on the toilet when D got home.  I wrapped myself in a towel and D and I drove to Labor and Delivery (without anything - no hospital bag, nothing).  D drove very, very quickly in order to get my there.  Once there, we hustled into L&D and the nurse rushed me back into a triage room and hooked me up to monitors to check on Jack and to see if I was contracting.  I made the nurse promise that she wouldn't send me home from L&D this time without a baby!  While I was laying there, I was freaking out.  Suddenly, a wave of peace came over me and I very clearly and strongly felt the presence of my Grandpa Taylor and Dustin’s Grandpa Jack (the two men Jackson LaMar is named after).  I knew that they would take care of me and Jack through this whole thing and that everything would be ok. 

A doctor came in very quickly to see me in my triage room and when she checked me, a new wave of fresh blood came pouring out.  I was not dilated at all and was not contracting.  The doctor rushed me in to a labor and delivery room as my placenta was pulling away from my uterus and my water had broken and I was hemorrhaging.  Once in the delivery room, I was re-hooked up to monitors for Jackson and for my contractions.  The nurse also hooked me up to additional IV’s to prepare for pitocin and IV hydration and any possible additional drugs that would be needed (little did I know that every single lead would be used by the end of the night).  The anesthesiologist also came in and hooked up an epidural line, but did not hook up any drugs.  The doctor and nurse wanted to be sure that I had an additional line if needed to put me under for a C-section.  I continued to bleed and leak amniotic fluid, but Jack’s heartbeat was strong.  The high risk OB came to see me and told me that it could take several days for the labor to progress and Jack to be born.  But, because of the very real possibility of a C-section, I was not allowed to eat or drink anything. 

Once hooked up to pitocin, I started to progress a little bit.  My nurse told me that the most difficult part would be to get me dilated to a 4, and that is what we spent the next few hours doing - waiting for me to dilate to a 4.  At one point my OB/GYN walked in - he was one of the OB’s on shift that night!  When he walked in, he said, “What are you doing here?  I just saw you yesterday at your 36 week appointment!”  I told him that I just couldn’t wait anymore and Jack wanted to come now.  And he was able to get assigned to me to be able to deliver Jack. 

D’s mom stopped by around 5 pm to check on how we were doing.  D hadn’t eaten anything since breakfast, so G took him to eat at Costa Vida.  While he was gone, very painful contractions started in my back.  I couldn’t get ahold of D or G.  I was messaging my brother on Facebook and asked him and Mom to also try and call D and G and tell him to come back to L&D.  I was in so much pain, I had one leg hanging off each side of the bed and was gripping a tray table and rocking back and forth.  D finally showed up and when he walked in the room I said, “I am going to kill you!”  He started laughing as he walked over to my bedside.  I said, “Stop laughing, you are seriously a dead man!”  He kept on smiling as my nurse, Candi, was giggling a the two of us.  Just then, my anesthesiologist walked in the room to hook up my epidural line.  My back was killing me and I told my anesthesiologist, “It’s a good thing that you placed this line earlier because if you were trying to put the line in my back now, I would probably turn around and deck you!”  I could feel my anesthesiologist’s hands shaking because she was laughing as she hooked me up - my nurse and D were also laughing.  Before the anesthesiologist left, she made sure to do push the epidural button a couple of times for me.  Once the drugs kicked in, I apologized to Dustin for wanting to kill him.  I said something along the lines of, “I’m so sorry for wanting to kill you.  I don’t want to kill you.  I don’t want to be a single parent.  I’ll just beat you with one of your limbs.”  My nurse also got a kick out of me while drugged.  The epidural helped a lot and I was able to relax some.  Jackson kept on squirming away from the monitors and during contractions his heart rate was dropping quite low.  A midwife came in and placed a monitor on Jackson’s head so that they could more accurately check his heart rate.  A catheter line was also placed to put fluid back into my uterus so try and help keep Jack’s heart rate elevated - the thought being that because there was no amniotic fluid, every time I contracted, it was putting a lot of stress on him.  This entire time, I'd been throwing up off and on, as well.

My contractions started coming more regularly and I was able to dilate to a 6 when my nurse turned off the pitocin to let me progress on my own.  At this point, the nurses switched and my new nurse Julie started helping me through the progression and contractions.  I progressed very quickly from a 6 to a 9.  It was quite late in the evening and I hadn’t eaten or drank anything all day and was feeling quite weak and exhausted.  I got to a 10 and my nurse started having me push some.  Jackson’s heart was still dropping during contractions and while I was pushing and it made me nervous to hear the beep patterns of his heart change so much.  A couple of other nurses came into the room to get the baby basinet and delivery table ready.  Meanwhile, my nurse was on my right side and D was on my left side coaching me through each contraction.  Because I’d had nothing to eat and drink, each time I went to push, I got close to blacking out.  As I pushed harder and made more progress, my nurse hooked me up to oxygen because I was blacking out between contractions.  Julie had me change positions to try and get the most out of each contraction and push.  The harder I pushed, the more Jack’s heart rate fell and it the longer it stayed low.  I got to the point where I was so exhausted I couldn’t push anymore so Julie had me take a half hour break.  I stayed on oxygen the whole half hour and tried to gather as much strength as I could.  When I was ready to start pushing again, Julie kept looking for the Jack’s head and to see the color of his hair to help motivate me.  I wasn’t able to make any progress.  Jack’s head was stuck under my pelvic bone.  I was able to make some progress while I was pushing, but then he would slip back between pushes.  After trying to get Jack’s head under my pelvic bone for twenty minutes, I was beyond exhausted.  Julie went to get Dr. Wong to have him use a vacuum on Jack’s head.  He came in, put on scrubs, and watched me push once before quickly whipping out the vacuum to get Jack’s head out from under my pelvic bone.  I hadn’t pushed the epidural button in a while, so I could feel Jack’s head and it was incredibly painful!  Dr. Wong had me push a few more times to get Jack out - slow pushes with long, deep breaths.  After 19 hours of labor, and 4 hours of pushing, Jack came right out!  He was plopped on my belly, but I could tell from Dr. Wong’s response that something was wrong.  Jack was totally grey, not breathing, not moving, and completely wrapped in his umbilical cord (which was only 2 veins instead of 3).  Dr. Wong was very quick to clamp and cut the cord.  As he did so, he told a nurse to call a code.  Immediately, a rapid response team was called to my room for Jackson.  D and I stared at each other in shock as a swarm of people swooped in and took Jack over to the baby bassinet area.  One of my nurses came quickly over to me and told me that everything would be ok.  She told me that Jack wasn’t moving or breathing and his color wasn’t good, but that all of the doctors and nurses were going to get him taken care of.  I was in disbelief - we had worked so hard for so long to get Jackson here and he was in an extremely scary situation.  I immediately started thinking worse case scenarios.  D and I watched anxiously as everyone worked on Jack.  His color got better and I could see him starting to breath more quickly.  He also started kicking and moving his arms.  His little hands and feet were purple, almost black, from his circulation not working super well yet.  He also had a bruise on his head from the vacuum and from the uterine monitor that was on his head.  Jack’s nurse, Misty, and D stood close to Jack and watched him closely.  
 

 
Things started to calm down and it seemed that Jack was doing well and would be able to come with us to our room instead of going to the NICU.  D asked Misty under what circumstances would things change and Jack would have to go to the NICU and she said if he started grunting while he was breathing then he would have to go to the NICU because the grunting would mean that his lungs weren’t staying expanded while he was breathing.  Shortly after, Jackson started grunting and the decision was made to send Jackson to the NICU.  Misty let me hold Jackson while they were getting things ready to transport Jack to the NICU.  He was so sweet and precious - it broke my heart to hear him struggling to breath!  It was also heartbreaking to have to give him to a nurse and watch them take Jackson away.  D went with Jack to the NICU leaving me and Julie in the delivery room - I felt so alone after all the commotion from the day.  Julie brought me some french toast as we waited for D to return and for my bleeding to slow.  D returned and looked exhausted and so worried - I don’t know how long he was gone as my concept of time was completely screwed at this point.  Julie got us ready to go upstairs to our recovery room.  Kaiser plays a lullaby when a baby is born and the mom and baby go up to their room on the third floor.  As she wheeled me upstairs, Julie had a lullaby played for us even though our baby wasn’t with us.  It was another sad moment, going upstairs without my baby.     

We got into our room and said goodbye to Julie - she asked if she could go see Jack in the NICU and we of course said yes.  Julie was so wonderful to us and we were so grateful!  Our new nurse, Linda, got all my vitals and oriented us to the recovery floor a little bit.  She encouraged me to get some rest, but I couldn’t rest without seeing my baby boy.  D went and got a wheelchair and took me down to the first floor where the NICU unit was.  We went into Jack’s NICU pod and his little bed was the first one on the left.  He was hooked up to a breathing machine, had an IV in his left hand with 5 IV leads coming out of it, a tube coming out of his mouth, and three leads stuck to his chest monitoring his heart and respiration.  He was hooked up to a IV’s getting D-10 and antibiotics.  His stomach had been pumped twice because it was full of bloody amniotic fluid.  His left hand was all taped up, like a club, so that he couldn’t mess up the IV line.  It was the saddest thing I’d ever seen.  I asked the nurse if I could touch him and she said that I could place my hand on him and that was it.  All I wanted was to hold my baby, but he was hooked up to so many things to help him that all I could do was place my hand on him. 

Honestly, the next little bit is a blur.  I know that Dustin and I went back to our room.  We ate more, cried, tried to sleep some, and made more trips to the NICU.  We talked to one of Jack’s nurses or his doctor and asked what was needed for Jack to be released from the NICU.  They told us that he needed to breathing on his own, eating on his own, off the IV’s, and not jaundiced.  We had no time frame for how long this would take or anything.  Jack was on a 3 hour eating schedule, so we made trips down to the NICU every 3 hours.  Every time we went down, there was something new.  One time, Jack pulled out the tube going down to his stomach.  One time we went down there and the breathing machine had been removed.  One time we went down there and his bilirubin numbers were up.  It was a roller coaster day!  We were so exhausted and were not getting much sleep because of having to go down to the NICU every 3 hours.  On top of that, I was in pain from giving birth so I was moving quite slowly.  Additionally, my nurses had to take my vitals every 8 hours.  We were missing meals, missing shift changes, our schedule was all over the place.  And we were tired, emotionally frazzled, and running on fumes. 



Spending time in the NICU with J was so precious.  Watching him sleep, eat, move - he was such a miracle.  I had to check out of the hospital after 2 nights, but they kept J in the NICU for a few more days.  That was the weirdest thing - leaving the hospital without my baby.  We went home, showered, grabbed everything that we hadn't taken with us to the hospital, and then turned around and went right back.  Kaiser has an awesome program called the Boarder Program that allows parents to stay in empty L&D rooms for an additional few days if their babies are in the NICU.  We were able to stay at the hospital for 2 more nights to be close to J.  He had a couple of visitors - his Aunt S and Uncle C, Mema (D's Mom) and our friend E.  And J charmed everyone in the NICU - all of his nurses just adored him and loved telling us how sweet he was.  And we had the most wonderful nurses caring for J.  They were all so attentive, sweet, and helpful.
 



We brought J home from the hospital on Mother's Day and it was the sweetest Mother's Day gift I could ever receive.  My heart was bursting with love and pride as I carried my sweet baby boy into our home.  D and I sat and watched him sleep for hours, so grateful for our miracle boy.

And I am more and more grateful for him every day.

Thursday, December 6, 2012

How to Act

In the 2 days that my Duchess Kate and Hyperemesis post has been up, it has been viewed over 200 times.  Because of this response on the blog and the responses I've gotten on Facebook and via email, I gathered a few ladies I know who also have experienced HG to put together this post for you:

  • Go spend some time with her!  She's not contagious - you won't catch HG.  But she is probably (definitely) lonely and scared.  While she won't have energy to so much, most likely, just sitting on the couch with her will make a huge difference!  There was a wonderful woman who came and spent an hour with me each Wednesday and we played a different game each time.  From the minute she left until the minute she came the following week, I looked forward to when she would be back again!  Kathlen said, "Visits were the best because it allowed me time to focus on something else, beside dying on my couch."
  • Don't offer to help, just go and help.  Heather said "clean her bathroom floor with non-pungent solvents so it's ok to lay on."  While I was pregnant, I would never have ask someone to come and clean my bathroom floor.  But if someone had just showed up on my doorstep and said, "I'm here to clean your bathroom" I probably would have cried from gratitude.
  • Educate yourself on HG!  More than likely, she doesn't know HG any better than you do (unless she's experienced before).  
  • On a related note, help her when she has to fight with doctors and nurses to get care.  Be her advocate!  Be her voice!
  • Text, email and call regularly!  Daily, even!  She needs to know that you're thinking of her and you care about her, even if you can't be with her.
  • Help her connect with other women who have had HG - there are websites and facebook groups.  Kaiser also has a support group, if you have Kaiser insurance.  Anna said, "Support from someone who's been there...has been priceless."
  • Do research for her that she doesn't have the energy to do herself - Heather said, "research on how to get the cheapest meds, which vitamins are most important if she can keep them down, the best NICU's," etc.  If there's something she has questions about, help her research the answers!
  • Make her laugh!  A funny movie, silly jokes, goofy youtube videos, whatever.  Laughter is a wonderful medicine!
  • We're sure you mean well and want to help, but don't suggest crackers, ginger, or Gatorade.  Those three things aren't gonna do it for us.
  • If you want to bring food over, bring frozen dinners or do all the prep at your house so she doesn't have to smell it.  Kathlen said, "The best dinners are frozen. Frozen meals are great because it gave me an opportunity to decide what I thought sounded good, and I might be able to get a very small bite before I threw it up."
  • Listen without judgement.  Let her cry.  Let her scream.  Just listen and love. 

If you or someone you know is suffering from HG, please check out the HER Foundation.
If you want to talk about your experiences with HG or have any questions or concerns about HG, please email me at landon {dot} wheeler {at} gmail {dot} com.  I will do my best to give you a listening, empathetic ear and/or to help you navigate your way with HG. 

Tuesday, December 4, 2012

Duchess Kate and Hyperemesis

For those of you living under a rock, Duchess Catherine is pregnant!

What really has me interested about Kate's pregnancy is that she has been diagnosed and hospitalized with Hyperemesis Gravidarum (HG).

The media is calling HG a "severe type of morning sickness."

I am calling B.S. on this description.

"'Hyperemesis gravidarum (HG) is vomiting during pregnancy that is so excessive that women can become dehydrated and start to lose weight because of inadequate nutrition,' said Dr. Amos Grunebaum, director of obstetrics at New York Presbyterian/Weill Cornell Medical Center. 'If not treated properly with intravenous fluids and anti-nausea medicine, it can be life-threatening to pregnant women and their fetuses,' he said."
from Health on Today

Some of you may recall, when I was 2 months pregnant (after 2 miscarriages, years of trying, and infertility treatment), I was taken out of work and put on bed rest for HG.

I rapidly lost weight.
I could not keep food or liquids down.  At all.  Ever.
I threw up if I ate anything.
I threw up if I drank anything.
I threw up if I smelled anything.
I threw up if I thought about food or beverages.
I threw up when I stood up or changed positions.
I threw up when I woke up, any time of day or night.
I threw up if I was on my feet for more than 20 minutes.
I threw up if I was in the car for more than 15 minutes.
And while J thrived, I honest to God felt like I was dying.

Kaiser has an HG program that I was admitted into around 16 weeks.  I had a nurse call me every day asking me how much I had thrown up, how much I had drank, and making appointments for me to go get hydrated every other day.

Because I was so chronically dehydrated, many veins were blown out while attempting to start IV's.  No joke, I can show you all the veins in my hands and arms that are now useless for IV's.  There are maybe 2 spots on my hands/arms that are still usable for IV purposes.

Because IV's were so difficult (and sometimes impossible) to start on me, I had to wait until I was severely dehydrated before I could get IV fluids.  Which only made things worse.

On March 16, I had a permanent IV line placed because I was rapidly running out of veins, which was very alarming to my OB. Once my PICC line was in, I was able to receive 3 liters of IV fluid (D5LR) 2-3 times a week minimum.  (I had standing appointments on Mondays and Thursdays at Kaiser to get hydrated.)  This hydration continued until J was born.

During my pregnancy, I was hospitalized for heart problems, dehydration, severe allergic reactions and chemical burns to adhesive and my PICC line, and blood clots.

I tried every medication and combination of medication in an attempt to curb the nausea and vomiting.  IV Zofran was the only thing that helped a little.

I never gained weight while I was pregnant and my "baby bump" didn't show up until 7 months.  I was never able to keep down a meal.  I now hate Gatorade, Powerade and Sprite.

Each day, each hour, each minute was a challenge.
And I honestly didn't think I would make it through to the end.
I thought I was going to die.

And other women have had it worse.

Amanda Tynes, the wife of NFL player Lawrence Tynes, had such severe HG, she was told she needed to choose between aborting her babies or dying while trying to carry her child to term.

 Author Charlotte Bronte is thought to have died from it after a four-month bout of extreme nausea that left her dehydrated and emaciated.

So, dear Duchess Catherine, I am so deeply sorry for your suffering.  Pregnancy should be a time of celebrating and happiness, which is next to impossible when you feel like you're dying.

And dear media outlets calling HG "severe morning sickness," I hope you'll take the opportunity to learn more about this disease and not write women who suffer from it off as dramatic or weak.

If you or someone you know is suffering from HG, please check out the HER Foundation.
If you want to talk about your experiences with HG or have any questions or concerns about HG, please email me at landon {dot} wheeler {at} gmail {dot} com.  I will do my best to give you a listening, empathetic ear and/or to help you navigate your way with HG.

Saturday, April 21, 2012

The latest adhesive allergic reaction.

I'm so ready for J to be born and for my body to go back to normal.  Or close to normal at least.


Tuesday, April 10, 2012

PICC Line

For those of you who are interested in my PICC line experience:

I think that I'm my Dr.'s first patient with persistent (entire pregnancy) HG. At least, his first patient with HG who doesn't respond to any medication or combo of medications. The last few appointments he has seemed completely baffled at what to do with me. Fortunately, I have friends with HG who have shared their experiences and that has helped me with my Dr. and getting the treatment that I've needed. Don't get me wrong - I think my Dr. is fantastic. But my experience is definitely out of the "norm."

Anyway, I had to be pretty persistent to get my PICC line in. It was first brought up when I was around 4 months pregnant. The decision to not put one in at 4 months was based on the risks of infection with having a PICC in for 5 months and not knowing if my HG would go away (for a lot of women with HG, the symptoms go away around 22-25 weeks). So I continued to blow through veins to get IV hydration in the ER, triage, and Labor and Delivery. Around 5 months, my Dr. told me I had to cut back on IV hydration because I was blowing out my veins. So, in order to get hydration and justify having nurses poke me 6-7 times (because I have think skin and crappy veins), I had to be desperately dehydrated. Finally, at 6 months and trying a billion combinations of drugs and being chronically dehydrated and miserable for a month, I got my PICC line placed.

I had to travel down to Sacramento Kaiser to get my PICC placed. D drove me (because I am a hot mess and have been too sick to drive) and stayed with me while they placed the line. Unfortunately, it did not go as easily as the nurse had promised me it would. The line has to be placed in a sterile environment, so D and the nurse were both masked. I just looked away because I didn't want to watch! The nurse did an ultrasound on my right upper, inner arm to find the best vein to place the line in. She had no problem finding the vein and initially opening it. However, once the opened the vein, she couldn't advance the PICC line catheter (the catheter is placed up the arm, across the shoulder and then down to right above the heart). I started throwing up while she was trying to place the line. The nurse kept telling me to relax so she could advance the line, but try as I might, I couldn't stop throwing up and relax. Out of no where, I hear a crash and looked over to see D out cold on the floor with his head bleeding. When I looked over, I also saw my arm gushing with blood, my nurses hands soaked in blood, and everything around my arm soaked in blood. Still throwing up, and now freaking out, I didn't know what to do. They took D up to the ER to treat the cut above his eye (he hit a tray leg thing on his way down to the floor) and I started worrying like a crazy person about my husband - I wanted to go with him! I got so close to saying "Forget the line! I want to go with my husband!" Meanwhile, the nurse is still yelling at me to relax my arm. Crying, throwing up, freaking out; I don't know how, but finally the nurse was able to advance the line. They sent me up to x-ray to check the placement of the catheter. It was too low, so I was sent back down to infusion to have them adjust the line. Then back up to x-ray. Then back down to infusion for another adjustment (the line was still too low). All without D, and without knowing how he was doing or anything. Finally I said, "Can you please call the ER and see how my husband is doing??" One of the nurses called down and then told me "He's not in the ER." So of course I start freaking out more wondering where in the heck he is! Thankfully, he showed up in infusion just a few minutes later. His eye was a little black - turns out he had really really low blood sugar and that's why he had passed out - but I was so grateful to see him! He took me back up to x-ray for the last time and everything was good, thank God. Here's the kicker - once everything was good with the PICC line, I pretty much begged the nurses at Sacramento's infusion center to give me fluids - I had lost so much blood and been throwing up so much and was already dehydrated when we came in. They refused. Awesome.

We go home, I'm sobbing, D is wiped, and we both look at each other like you have got to be kidding me. D pulled it together and made me go to Labor and Delivery to get fluids. Thank goodness he did - talk about being desperately dehydrated!! My nurses and Dr. at L&D were life savers - they gave me tons of fluids and kindness. My Dr. also totally went to bat for me and, with one of the nurses in the Women's Triage Center, put together a serious game plan for me for the rest of my pregnancy. She was the best!

Now, I get 2 liters of D-5 with lactate ringer and 4g of IV Zofran every Tuesday and Friday in Roseville at the Infusion Center. Additionally, my PICC line has been used for blood tests to check my hormone and sugar levels. I also am going to be doing the 3-hour glucose test with my PICC line at the infusion center. The PICC is not at all uncomfortable and I haven't felt like I have been limited or anything by it. The first couple of nights after it was placed, my right shoulder was a little sore. I also felt a fluttering type sensation in my heart when I would lay down, which was alarming at first, but after some research I found out that the sensation was normal and a couple of days later the sensation went away. I have been able to sleep like normal (even on my right side - where the PICC is placed) and use my arm like normal (not that I was really doing anything with it to begin with...).

Being able to stay hydrated (for the majority of the time - the day or so before hydration, I'm usually getting pretty dehydrated) has made a huge difference in my pregnancy! I've gained 4 pounds in the last 4 weeks, which is incredible because I was down 10+ pounds pre-PICC line and had been unable to gain weight for months. It has also made a difference for my baby boy - he has had plenty of fluids and has been so much more active as a result!

I will say this about my PICC line - the most difficult part of having the PICC line in is the dressing. I've had allergies my whole life and a sensitivity to certain adhesives. The dressing placed over the PICC line has been quite itchy and uncomfortable. My nurses have been great at mixing up the the placement of the dressings to try and give different parts of my skin time to heal. However, this last week I broke out in serious hives under and all around the dressing placement. This has been the most challenging part. I can't itch the dressing, I can't put any type of topical treatment on the hives because it could affect the site, etc. I keep ice strapped to my arm almost 24-7 to try and alleviate the itching.

I will be grateful to have the PICC removed and to not spend at least 2 days a week in the hospital getting fluids, but I am so so grateful for my PICC line! I would do it again in a heartbeat. I'd pray for a different placement experience, but I don't regret the decision to have a PICC placed for the last 3 months of my pregnancy. It was made the HG much more bearable. I still have bad days, I still throw up a ton and eat only potatoes, but D-5 with lactate ringer and IV Zofran have been life, and vein, savers!

Sunday, April 8, 2012

It's a Gift

We talk a lot in the LDS church about different gifts that each of us has been given.

Some are given the gift of faith. Others the gift of humor. And on and on. But each of us has at least one gift.

I think that being a happy pregnant woman is a gift.

I'm not kidding! I've been thinking about it the last few days. I have realized that I am terrible at being pregnant. I whine, I make faces, I groan, I pout, etc.

I told this to D and he said "well, not every pregnancy is like yours." True, but regardless, I am still terrible at being pregnant. I could find the good. I could choose to be happy. "Come what may and love it" - yeah, I have been really bad at that the last 33 weeks. I just can't seem to get over feeling miserable!

Clearly, my gift is not the gift of being a happy pregnant woman. :)

And I'm totally jealous of the women who have that gift.

Tuesday, March 13, 2012

Good News, Everyone!

I had a doctors appointment today. I was really nervous. I love my OB/GYN, but for some reason, I was really afraid I was going to get scolded for get bad news about something.

This pregnancy has been difficult and with all of the complications of my hyperemesis, I worry that J isn't getting everything that he needs. I was looking at photos of myself at my 6 month mark and comparing them to several other ladies at the same mark and I'm so tiny! I couldn't help but think I'm doing something wrong! And when I hear about other women's experiences with pregnancy, I sometimes think I missed the Pregnancy 101 class that certifies you to have a normal-person pregnancy.

Anyway, I was nervous. And my doctor could totally tell.

He measured me and, here's the good news, I'm measuring perfect! J is the perfect size! He's head down and super active! So even though I am still 10 pounds lighter than where I was at the start of this pregnancy, J is getting what he needs and growing as he should.

Dr also said that he would deliver me as early as 36 weeks. That's only 7 weeks away! I mean, we want J to stay inside and grow as healthy and strong as possible, but knowing that there is a definite end in sight is wonderful!

And, I'm getting a permanent IV line (PICC line) in on Friday morning. That means I get get hydrated whenever I need, not just when my keytones are off the chart. :)

Physically, today was no better than any other day. But emotionally, I'm in such a better place! It's amazing what that does for my energy and confidence levels.

As difficult as this pregnancy has been, there have been so many tender mercies throughout and I am so grateful!

Friday, January 27, 2012

Newest Fad

Introducing:
THE PREGNANCY DIET!

  • Eat only bland foods (rice, bread, potatoes, no seasoning).
  • Drink only gatorade or powerade.
  • Throw up everything you eat and drink (you can take this one even further by throwing up at the mention or thought of food and drink).
  • Throw up every time you smell anything (good or bad - don't wimp out here!).
  • Throw up when you wake up (don't limit yourself to just the morning - naps, middle of the night, they all count!).
  • Throw up if/when you've been on your feet for more than 20 minutes (when in doubt, round up).
  • Throw up if you've been in a car, train, bus, plane for more than 20 minutes (again, when in doubt, round up).
  • Once in a while, just throw up for the heck of it!

"My name is L and I've been on the pregnancy diet for 22 weeks now. I've lost a grand total of 15 pounds! And I've kept it off! My abs get a great workout from all the throwing up. And I don't miss food nearly as much as I thought I would!*"



*Confession: I do miss food.

And, for the record, I hate throwing up.


Saturday, January 7, 2012

A New Year

It's 2012!

Yes, I realize it's been 2012 for a week. I'm a little behind.

I'm not really one for "New Year's Resolutions." Mostly because I either break them or forget about them.

But I have two resolutions this year:
Have a Babyand
Be a Mom

I swear, I'm not cheating.
Ok, maybe a little.

But, in my defense, this pregnancy has been the hardest physical thing I have ever gone through. And every day, I wonder how on earth I will get through another 24 hours. There have been many tears, hospital/ER trips, I have been off work and on bed rest for a month and a half, I've lost 10-15 lbs, I've been on many different medications, I have a long list of foods that are horrible to throw up (surprisingly, not every food is equally horrible to throw up), and the headaches, vomiting and nausea are debilitating.

Many well-meaning people keep reassuring me that it'll get better and it'll be worth it. Neither of these phrases bring me much comfort.

What has really brought me comfort is a conversation I had with my friend M over Halloween. She has also had very difficult pregnancies and is very empathetic to all of my challenges. We were talking about the worst parts and M said, "but then I think about the Savior and all He suffered for me. Can't I sacrifice my own comfort and well being for 9 months for this little one? It's nothing in comparison!"

Yes. I can sacrifice one more day, one more hour, one more minute, of my own comfort for this perfect little guy. I still have to keep myself healthy (you know, hydrated and stuff) so that this little guy can also be healthy. But the discomfort, the exhaustion etc. I can sacrifice and suffer knowing that my Savior sacrificed and suffered so much more for me.

And in 4 and a half more months, when I meet this little man, I'm sure it'll be worth it.

Wednesday, December 14, 2011

Bed Rest Take 2

Welp, I'm back on bed rest after 1 rather unsuccessful day at work. This time through the end of December.

Being on bed rest has made Christmas shopping rather, uh, challenging. As in, it hasn't happened.

And, to make matters worse, we're celebrating the W family Christmas on Sunday. That's in 4 days.

Danger.

Anyone have any quick Christmas gift ideas that can be accomplished from a couch?

Sunday, December 11, 2011

Bed Rest

What I've learned from two weeks on bed rest:
  • Netflix is a fantastic invention.
  • My couch is quite comfortable, even after days of laying on it.
  • Days of being all alone drive me batty.
  • The later it is at night, the battier I get.
  • Nothing much happens outside my apartment ever.
  • Reading in the bathtub is quite enjoyable. However, my water heater doesn't make enough hot water to keep a bath hot for very long. So it takes multiple fillings.
  • Facebook and Pinterest get really boring after awhile.
  • At the same time, Pinterest has given me lots of inspiration for decorating my next house.
  • All Facebook games are the same.
  • My puppy LOVES to snuggle.
  • D is a really great caretaker.
  • Showing takes a lot of work.
  • So does putting on normal person clothes, doing hair, and putting on makeup.
  • Pajamas are very comfortable.
  • Sleeping is never overrated.

I go back to work tomorrow. We'll see how it goes! Wish me luck...


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